Mom came home yesterday. 23 days total in the hospital. This time she grafted faster than in 2008, which caused graft disease where her body shut down. It was a harder row this time. She had some issues with her lungs and heart. Once she was able to get off the oxygen they were able to send her home. Below is a pic of the nurse prepping her for release.
She takes home a tired body, a bald(ish) head that will be completely bald within a week, and her pick line. She has to follow up next Monday to make sure her numbers are still good, then one with a cardiologist in 2 weeks to make sure her heart is stable. Now we wait. They will know if she is in remission in 100 days. Her life will be a little rough in solitude for the next few weeks; she cannot be in public for a while. Her hair will start to grow back in a few months. Her energy will return. And if all went well, she will be in remission for a few years.
Mom is a rock star. Her life has been taken away from her and she is starting from scratch. Her immune system is the same as a newborn. She cannot fight any infection by herself, so she is on medication for it. She has the energy of a little kid too, needing naps (plural) to make it through the day. It is going to be a rough go, but she is going to make it.
Bests of all? She found her sense of humor again in the last few days. She is a fighter in red cap, pajamas, and slippers. But at least she is a fighter.
3 comments:
I am glad to hear that she is home but I am sad to hear that she is battling this monster again. Love you and hang in there, the both of you.
glad she is home and recovering well. go mama!
a great family,lots of naps, a sense of humor, pjs and slippers, i'm gonna say she is going to be just fine real soon! God bless.
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